Chapter 3

URBAN POPULATIONS: NEEDS AND
DIRECTIONS
Urban places...a melding of sights, sounds, and rhythms converging from
different neighborhoods to a central core that defines the unity of this
place or that. America's urbanness reflects this and more the coming
together of immigrants from around the globe, some in the past and some
more recently; the movement of rural residents to the city; the sharing of
opportunity and work; and a vision of the future. Some of America's urban
areas are small, others are large. Yet, the problems and challenges are
similar, reflecting the hopes and concerns of people, wherever they
congregate.
America's cities are great places of complexity and heterogeneity. Some
individuals thrive here, while others despair, searching for promised
opportunity. Many families enjoy full access to all that is offered, but
other families do not. Health care is one resource that, too often, is not
available or affordable for significant numbers of urban residents. These
underserved populations thus become vulnerable to poor health as well as
the poverty and disarray that already characterize their lives. In some
cases, the health care that is offered to individuals is not desired
because of prevailing world views or cultural beliefs. These persons, too,
will not utilize the services provided and may ultimately suffer disease
or illness that could have been prevented or limited.
America's urban and vulnerable populations, nevertheless, have much to
offer to themselves, their communities, and society. Health care
strategies that target these populations and involve them in their own
health care will benefit not only individuals and families, but also whole
communities. Comprehensive approaches that incorporate a community's
family, work, and health values, as expressed by the individuals within
the community, build on the strengths of these populations. When merged
with the technical capabilities of current medicine, these strengths can
bring about improved health and quality of life for all individuals and
families within the community.
In this chapter, the panel presents for consideration a review of the
state of the science of research on community-based health care strategies
for vulnerable and underserved urban populations, identification of
research needs and opportunities, and a list of specific recommendations
for future research. For context, the panel first presents an overview of
the health of urban America.
Overview: Health in Urban America
The Urban Environment
The terms urban or city frequently connote large metropolises, now
found in all regions of the United States. While urban areas have always
been sources of great complexity and diversity, the populations in these
metropolises today are chal- lenged by new directions and a range and
extent of problems not heretofore seen severe poverty, drug trafficking,
substance abuse, high rates of homicide, violence, and
homelessness.
Smaller cities are confronted by many of the same challenges and
problems. In fact, as Wright (1993) suggests, these smaller cities may
face greater problems because they lack a strong industrial base, have
higher proportions of their popula- tions in poverty, and have a less
developed welfare system.
Urban areas are usually distinguished from rural areas by the following
characteristics: population size, population density, and geographic
space. Compared with rural sections of the country, urban areas in general
have larger and more dense populations, combining more and various social
and cultural values and norms.
Populations At Risk
In urban environments, certain populations are vulnerable and
underserved. It is these populations that the panel addresses in this
chapter. Vulnerability implies a wide range of potential and actual health
risks (Aday, 1993). Indeed, individuals and families who are most
vulnerable (i.e., suffering the greatest morbidity and mortality from
disease and/or the greatest discrepancy between projected needs and
available services) are at risk for multiple physical and mental health
problems.
Defining populations at multiple risk is often complicated by a failure
to understand the interactions among factors such as poverty, class, race,
ethnicity, geography, income, insurance status, education and other
indicators of socioeconomic status, and social support systems in
contributing to vulnerability or ameliorating against risk (Aday &
Andersen, 1983). Cultural beliefs and practices also may influence risk
through individuals' perceptions of health and disease as well as their
utilization of health care services.
Populations facing these multiple risks include infants, children and
youth, young and middle-aged adults, and elders. As members of vulnerable
families and communities in closely bound urban settings, they share in
the risks of the larger group. These individuals are challenged by low
income and education levels and high rates of infant mortality and chronic
disease. They confront infectious diseases, such as tuberculosis, which is
reemerging in American cities, and sexually transmitted diseases,
including AIDS. In some major metropolitan areas, poverty, drugs, and
lifestyle contribute to making AIDS a significant killer of young
adults.
In addition, although illegal drugs and alcohol have for decades been
part of the urban scene, the emergence of crack cocaine as a marketable
drug in poor urban neighborhoods during the 1980s has elevated drug abuse
and trafficking as major health problems among vulnerable U.S. urban
populations (Whitehead, Peterson, & Kaljee, 1994). The ready
accessibility of crack cocaine, and now heroin, and the economic potential
in selling drugs, combined with the decline in other employment
opportunities for young men in these populations, have accentuated urban
drug problems. A dramatic increase in violence and homicides has
accompanied the increased presence of drugs and guns in urban
settings.
These contemporary social problems (drugs, AIDS, violence, as well as
unintended pregnancy) are proving particularly harmful to children growing
up in the inner cities of America. Children are being recruited into drug
trafficking as early as 9 and 10 years of age, and more inner-city
children are involved in and are the victims of violence than ever before
in American history.
More children are also having to cope with drug-addicted and/or human
immunodeficiency virus (HIV)-infected parents. Hospital maternity wards
are tending to babies born addicted to drugs or with HIV. The social,
economic, and emotional burden to individuals and society of children
addicted to drugs or with AIDS is difficult to estimate. Only now are the
costs of special education programs for these children during their school
years being realized. One can expect that these children will not become
productive adult members of society, but continue to be an economic
burden. Already, their care exceeds available community-based resources
and they extract a heavy social and emotional toll on families and health
care providers.
Community-Based Strategies in Urban Settings
Well-known community-based health care strategies used in urban
settings include early public health approaches, public health
departments, categorical programs targeted at particular populations or
health problems, community health centers, community nursing centers, and
case management services. These different strategies have evolved in
response to particular social problems or to fill a gap in health care
delivery. Their missions and objectives frequently include varied and
differing components of community-based strategies, as conceptualized by
the panel.
Public Health Departments. Originating in the 1800s,
public health departments represent a governmental response to
environmental problems and infectious diseases. The infrastructure created
typically provides preventive services and has been described as
contributing significantly to community assessments, health screening and
monitoring, and program planning. However, a recent Institute of Medicine
study of public health (Institute of Medicine, 1988) calls into question
whether clinical services and public health departments are viable and
continuing to meet community health needs.
Categorical Programs. As additional health and social
problems were identified, governments and foundations provided funding for
an increasing number of categorical programs added to the public health
and medical agenda. The proliferation of Federal categorical programs is
mirrored at state and local levels. These programs, not all of which are
community oriented, include the Title V children's programs, the Ryan
White AIDS Care bill, the McKinney Health Care for the Homeless Program,
Healthy Start, Breast and Cervical Cancer Outreach and Prevention
programs, and numerous mental health and substance abuse
programs.
Programs such as family planning or detection and abatement of lead
poisoning, which are supported by public Federal and state funds, and
other categorical programs targeted at hypertension, sexually transmitted
diseases, prenatal care, and immunization now dominate public health
department and community-based intervention programs. Programs designed
for, and limited to, specific age groups, such as infants, children, women
of reproductive age, or elderly persons, are also often supported
publicly. Thus, individuals, families, and communities at multiple risk
are often served by a proliferation of categorical programs or by programs
that have been pieced together from many categorical funding
streams.
Community Health Centers. One response to meeting the
multiple health needs of individuals within small service areas, usually a
single neighborhood, is the community health center. First funded in 1965,
these centers provide comprehensive primary care (Sardell, 1988) for a
geographically defined area. They have had some success in meeting the
health needs of medically underserved populations, but have not spread to
larger geographic areas for a number of reasons.
Community Nursing Centers. Nurse-managed community
centers provide nursing care that may be categorical or comprehensive.
They have provided an institutional base for important nursing
contributions to community-based health care (Connolly, 1991; Haas, 1992;
Riesch, 1992b).
Case Management Services. Developed in response to an
increasing need to manage the quality and cost of care in the face of
limited resources, case management services bridge the gaps in multiple
services needed by multirisk individuals.
Challenges
Community-based strategies for underserved urban populations are faced
with the same challenges as those for rural populations. Community
members' involvement in these strategies and their utilization of the
health care services offered will reflect the degree to which services are
available, accessible, affordable, appropriate, adequate, and acceptable
to the different groups in the community (Krout, 1986, 1994). For urban
settings, comprised of dense populations and great diversity, these
challenges are significant and their dimensions will vary for each client
group.
Outcomes
Each strategy can be assessed in terms of outcomes (e.g., impact,
efficacy, and effectiveness) based on the literature and experience
accumulated thus far. The published literature provides direct and
indirect evidence of the benefits of more recent community-based health
care strategies.
Studies published in the early 1970s, for example, show a high quality
of care in relationship to standards of care and clinical management
protocols (Morehead & Donaldson, 1974; Morehead, Donaldson, &
Seravalli, 1971); reduced use of emergency rooms among city children
(Hochheiser, Woodward, & Charney, 1971); and reduced morbidity
(Gordis, 1973). Compared with other providers, community health centers
have been shown to reduce costs to Medicaid when these costs are
controlled for patient characteristics and service mix (JRB Associates,
1981, 1982).
Because of the dearth of more recent studies of community health
centers, the Health Resources and Services Administration (HRSA) and
Bureau of Primary Health Care adopted an ambitious evaluation strategy in
1992. Within this strategy, these organizations are sponsoring research
and evaluation studies to measure case mix, processes and attributes of
care, quality of care, patient satisfaction, outcomes of care, health
status, and cost of care in community health centers and other federally
funded comprehensive primary care systems.
A major evaluation effort pertaining to community nursing centers is
under way. Mandated by the Omnibus Reconciliation Act of 1987, this study
addresses community nursing organizations (CNOs) for Medicare members. The
CNOs incorporate selected community and ambulatory services, including
case management, home health, provision of durable medical equipment, and
outpatient therapies, within a nurse-managed, capitated system of care
(Lamb, 1995).
Four CNOs, in Arizona, Illinois, Minnesota, and New York, have enrolled
approximately 10,000 participants in this study since early 1994. The
evaluation design is longitudinal and experimental. Several quality and
cost outcomes will be reported, including health status and health
promotion activities of participants, satisfaction with health care, and
use and costs of all health services. The four CNOs are using a uniform
method for classifying nursing problems and will document frequency and
changes in these problems.
Existing studies of the outcomes of community-based health care
strategies in urban settings are deficient in several respects. They lack
common conceptual and operational definitions (Bergen, 1992); they are
mostly descriptive and offer only limited analysis of outcomes (Riesch,
1992a); and they have focused on small sample sizes and selected
populations within noncomparable communities, thus limiting the
generalizability of findings.
These limitations are further complicated by a complex design issue
determining which factors influence outcomes. Comparison group,
longitudinal designs, or other quasi-experimental designs are needed to
clarify the relative importance of a community's context, the model of
community health services used, and other factors. The separate or joint
effects of community and model characteristics on outcomes have not yet
been examined in the literature.
A Population Focus
In this chapter the panel addresses some of the most vulnerable and
underserved populations in American cities, as defined by several key risk
factors related to health and health care: income level, ethnicity and
race, age, and occupation. The populations addressed are low-income
individuals and families (specifically, low-income women and children),
ethnic and racial minorities, the elderly, and urban workers. The panel
selected these populations as examples of high-risk, vulnerable groups in
urban settings; there are many other groups as well. The panel could not
specifically address the community health care needs of all these groups,
but aimed, through sample populations, to highlight the wide range of
health needs and problems faced by all vulnerable urban
populations.
Two populations on which the panel chose not to focus but which are
clearly vulnerable urban populations are homeless persons and the mentally
ill. Homeless persons are addressed in the literature on community health
care and are the target of categorical health care interventions. However,
little research has been focused on assessing the clinical services,
programs, or health care strategies targeted to this population (Lukomnik,
1993).
Because of the dearth of documented information assessing health care
for homeless persons, the panel was not able to review the community-based
health care needs of this population in detail. It should be noted that
homeless persons are not a homogeneous population, but include distinct
subgroups such as Native Americans, mentally ill persons, and individuals
and families marginalized from the larger society for social or economic
reasons. For mentally ill persons, a vulnerable population in both urban
and rural settings, major research programs are already under way and
supported elsewhere.
The population focus in this chapter also reflects the orientation of
studies and programs addressing the health of U.S. urban environments. The
published literature largely focuses on categorically defined groups, such
as homeless persons, HIV-infected individuals, and pregnant women.
Intervention programs, similarly defined by diagnostic categories, focus
on, for example, asthma prevention, prenatal care, and hypertension
control. Outcomes are generally measured along a single dimension, such as
birth outcome. And community-based interventions and programs are often
initiated in response to selected health needs of a particular age group
or population.
The characteristics of community-based health care strategies,
described in chapter 1, are considered in assessing the state of the
science and research needs and opportunities for vulnerable urban
populations. Accessibility to available, affordable, appropriate,
adequate, and acceptable primary health care across the full continuum of
care, including primary, secondary, and tertiary prevention is as relevant
to urban settings as to rural areas.

State of the Science
Low-Income Individuals and Families
Low-income individuals and families represent a large proportion of the
vulnerable and underserved populations in urban settings. Low income is a
major contributing factor to poor health, affecting men, women, families,
and children alike. Low income threatens the self-esteem and self-efficacy
of all family members and, in association with violence, AIDS, drugs,
incarceration, and low educational achievement, compromises the health of
both families and individuals.
Low-income men and women of all racial and ethnic groups are vulnerable
as part of this family unit. Women, especially, are vulnerable as single
family providers who also are most often responsible for the care and
nurturing of children and youth. In addition, some urban women are faced
with an increased number of risk factors associated with low income,
including violence, drug abuse, prostitution, and AIDS.
However families are defined, those with low income are less likely to
use formal health care services appropriately or adequately than are
families with higher incomes. Financial barriers (affordability) limit
their accessibility to services, even when these services are available
and acceptable. While Medicare and Medicaid are important programs for
these populations, many low-income individuals and families are ineligible
for Medicaid and yet do not enjoy employer-sponsored health
insurance.
Without healthy families, one cannot have healthy communities and, if
communities are not healthy, they do not survive as an integrating
framework for socializing children to become satisfactorily functioning
members of society. In this section, the panel specifically addresses
low-income women and low-income children and youth as especially
vulnerable and underserved urban populations. At the same time, the panel
supports the need for community-based health care strategies focused on
low-income families, including men as well as women, children, and youth.
For this report, the panel considered related reports in family research,
but did not conduct an overall, comprehensive review of this extensive
body of literature.
In reviewing the state of the science specifically on low-income women
and low-income children and youth, the panel notes that the needs of these
two groups are often addressed by separate programs. These groups are
therefore considered separately below. The panel also recognizes the need,
however, for designing community-based programs that link women and their
partners with their children.
Low-Income Women
Low-income women in urban settings face multiple health risks
throughout the lifespan (Grisso & Watkins, 1992). Some of these risks
are for diseases and conditions common in the U.S. population, which may
be exacerbated by urban poverty, and some are for health problems germane
to poverty, urban living, and ethnicity. Publicly funded programs have
targeted certain problems (e.g., aging, AIDS, pregnancy and prenatal
care), but there appear to be no well-designed, comprehensive,
community-based strategies for addressing the health of low-income women
across a continuum of care.
It is apparent that accessibility to health care services is a concern,
as well as the affordability, appropriateness, adequacy, and acceptability
of care. The behavioral and biological factors influencing these issues
have yet to be delineated fully and understood. Some success has been
shown with educational and focused interventions, involvement of community
organizations and members, and use of lay workers. Indications are that
low-income urban women would be receptive to, and would benefit from,
comprehensive, appropriate, and affordable care.
Defining the Population. The literature on low-income
women focuses predominantly on women in ethnic and racial minority groups
(Barbee, 1986; Benjamin & Stewart, 1989; Catchen, 1988; Nyamathi &
Flaskerud, 1992) and older women (Arendell & Estes, 1991; Catchen,
1988; Dressel, 1988). Few authors have sought to clarify the bases for
classifying women as low income (Gimenez, 1989) or the specific concepts
for understanding low income as a designation depicting a vulnerable group
(Stevens, Hall, & Meleis, 1992). In the literature, "low income" often
is used in association with ethnicity, minority, and single heads of
household.
Health Status. Most of the published studies on the
health of low-income women in urban settings are descriptive. Studies of
the health risks facing urban low-income women emphasize substance abuse
and addiction (Ahijevych & Wewers, 1993; Barnes, Welte, &
Dintcheff, 1991; Cotton, 1990; Nyamathi & Flaskerud, 1992; Reiskin
& Lindenberg, 1992; Zambrana, Hernandez, Dunkel-Schetter, &
Scrimshaw, 1991); sexually transmitted diseases (Abel & von Unwerth,
1988; Coker et al., 1993; Seidman, Mosher, & Aral, 1992); AIDS
(Huddleston, 1995; Shayne & Kaplan, 1991; Suffet & Lifshitz,
1991); and battering or violence (Campbell & Parker, 1992).
Many of the women with these risks are minorities, pregnant, or of
childbearing age, factors that further complicate the health problems they
face. Isolated studies of diabetes in Mexican-American women (Luyas, 1991)
and breast cancer treatment in older women (Drugay, 1992) are also
available.
Factors complicating the health status of urban low-income women
include the harsh environment of urban poverty and difficulty in
understanding health problems and their treatment because of a low level
of education (often less than high school). While some of the risks and
complicating factors have been identified and studied, a comprehensive
understanding of the health status and diseases or conditions of urban
low-income women has not emerged a prerequisite for developing targeted
health care strategies.
Use of Health Care Services. Low-income women in urban
settings are at risk for a variety of conditions (mental illness,
diabetes, obesity, HIV/AIDS, and cardiovascular disease) but are less
likely than women in other income groups to access health promotion and
disease prevention services (e.g., prenatal, postpartum, and breast
examinations, papanicolaou tests) (Berrier et al., 1991; Burks, 1992;
Chavez, Cornelius, & Jones, 1986; Lacey et al., 1989; Makuc, Freid,
& Kleinman, 1989; Mandelblatt, Traxler, Lakin, Kanetsky, & Kao,
1992; McCormick, Brooks, Holmes, Wallace, & Heagarty, 1992; Nickens,
1990; Whitman et al., 1991). Nonuse of screening tests is often related to
lack of knowledge of the need for the tests or failure to include them in
routine primary care. A few studies have examined health beliefs,
including traditional beliefs, in relation to the use of these services
and recommend incorporation of traditional practices with health education
programs (Flaskerud & Rush, 1989; Flaskerud & Thompson, 1991;
Frye, 1989-90).
Studies of the delivery of care to low-income women generally are based
on small samples or local service activities and are primarily concerned
with prenatal care. These studies show the following: a lower use of
reproductive genetic services for women of color compared with Caucasians
(Nsiah-Jefferson, 1993); delay in seeking care owing to a lack of
understanding that they were pregnant and the absence of risk factors or
symptoms associated with pregnancy (e.g., diabetes) (Burks, 1992); and
greater use of family planning services offered by public health clinics
and private physicians than those offered by voluntary organizations
(Handler & Rosenberg, 1992; for rural women, Severy & McKillop,
1990). Other studies document barriers to use of prenatal services (e.g.,
cultural incongruence between low-income women and providers, inadequate
funding for vigorous outreach, lack of community awareness of available
services) (Miller, Margolis, Schwethelm, & Smith, 1989) and outreach
to homeless women in shelters (Kline & Saperstein, 1992).
Regarding other concerns, such as use of mental health services in
general or disease prevention services by older women, a variety of
studies have examined whether physician contact results in screening (pap
tests or breast exams) and whether low-income women prefer to access
private or public services (Makuc et al., 1989). Findings indicate that
Mexican-American women do not use public mental health centers as often as
other groups (Palacios & Franco, 1986); Hispanic women use inpatient
mental health services less often than do men (Russo, Amaro, & Winter,
1987); use of clinic care (vs. private private) is due most likely to the
lack of a regular source of medical care and lack of insurance coverage
(Radecki & Bernstein, 1989); and many Black women have coped with
life-long adversity and maintain a problem-solving perspective in
accessing care (Penn-Nolan, Levy, & Penn, 1986).
A few studies depict low-income women's management of health. One study
shows that African American women successfully use an active psychosocial
mastery process in obtaining and managing their care (Edwards, 1993).
Another study shows that community low-income women who use public health
department clinics for prenatal care are less likely to have preterm,
low-birthweight infants than comparable women receiving private physician
care (Handler & Rosenberg, 1992). With health care teams that convey
acceptable attitudes and have a good multidisciplinary mix, low-income
women are receptive, for example, to nurse-provided care in birthing
centers (Lyons, Reinke, Sutherland, & Zelenkov, 1992).
Lia-Hoagberg et al. (1990) make an important point in urging
comprehensive, coordinated, and multidisciplinary outreach and services
that address psychosocial and structural barriers. In their study of 211
white, Black, and Native American low-income urban women who received
adequate, inadequate, or intermediate quality prenatal care, they found
that psychosocial, structural, and sociodemographic factors were barriers
to care, whereas a mother's beliefs and support from others were
motivators for seeking care. Overall, the authors affirm the complexity of
achieving low-income women's participation in prenatal care.
Community-Based Strategies. Community-based programs
designed to serve the needs of women and their families are often
supported by public funding and limit their services to targeted problems.
Low-income women, who are at risk for multiple health problems, are often
served by a proliferation of categorical programs or by programs pieced
together from many categorical funding streams.
To facilitate describing community-based health care for low-income
women, existing studies have been organized into seven broad topics:
development across the life cycle; health promotion and maintenance;
health care delivery; reproductive health; physical diseases and health
problems; mental health and illness; and economics, ethics, policy, and
legislation (McElmurry & Parker, 1993). The number and content of
studies under each topic vary, indicating that research on low-income
women is broad and unfocused. Few intervention studies, including nursing
interventions, are reported. Some policy studies, often related to aging,
offer guidance on the policies needed to enable low-income women to access
health care.
Many health care practices are directed to the life cycle development
of low-income women, yet low-income women are rarely a focus of research
on community-based interventions for these concerns. Mothering, sexuality,
families, and relationships are aspects of the life cycle addressed by
health care practitioners but relatively unexamined by researchers.
Practice and interventions on these and other issues across the life cycle
are proceeding without benefit of an extensive base of research
knowledge.
The few studies on community-based health care for low-income women
across the life cycle address issues of aging such as menopause attitudes
(Standing & Glazer, 1992) and aspects relevant to AIDS such as sexual
behavior, sexual decision making and condom use (Fullilove, Fullilove,
Haynes, & Gross, 1990; Nyamathi, Bennett, Leake, Lewis, &
Flaskerud, 1993; Worth, 1989).
Positive results have been suggested for health promotion and
maintenance interventions designed specifically for low-income women
(Reis, Sherman, & Macon, 1989) and for interventions using lay health
workers or educators as part of the health care team (McElmurry et al.,
1987, 1990; McElmurry, Swider, & Norr, 1991; Sidel, 1991; Sung et al.,
1992; Swider & McElmurry, 1990). Some success has been reported in
using community organization or mobilization strategies to achieve health
education (Braithwaite & Lythcott, 1989; Jefferson & Smith,
1985).
Some authors note that categorical programs have not been successful in
inducing behavioral change (Fehrs, Hill, Kerndt, Rose, & Henneman,
1991) or providing adequate services (Whitman et al., 1991). Others report
success with educational interventions (Reis et al., 1989) and expansion
of services to achieve a "one-stop-shopping" health experience (Machala
& Miner, 1991).
Much of the literature on reproductive health is concerned with family
planning, including prevention of sexually transmitted diseases (McDonald
& Johnson, 1995; Woods, 1995); enhancement of pregnancy outcomes for
low-income women through prenatal care, outreach, and early identification
of low-income pregnant women (Aved, Irwin, Cummings, & Findeisen,
1993; Brooks et al., 1989; Poland, Giblin, Waller, & Hankin, 1992);
comparison of clinic, private physician, and nurse midwifery services
(Handler & Rosenberg, 1992; Schimmel et al., 1992); stress reduction
(Floyd, 1988); and provision of social support during pregnancy (St. Clair
& Anderson, 1989). Other studies are focused on the postpartum period:
counseling women to achieve success with breastfeeding (Grossman, Harter,
Sachs, & Kay, 1990) and assessing women's concerns during this period
(Nacion, 1988).
Most studies are focused on outcomes for infants rather than outcomes
and reproductive issues for low-income women. Reproductive health studies
of low-income women are limited in both breadth and depth.
The NINR currently supports a community-based nurse home visitation
program to modify the health risks and lifestyle behavior of urban
minority young women in relation to their pregnancy outcomes and the
childhood development of their infants. This study is replicating a
strategy found to be effective among young women in rural areas. Lay
health workers have been shown to be effective in accomplishing prenatal
outreach among rural women (Meister, Warrick, de Zapien, & Wood, 1992)
and may be equally effective in urban settings.
Few studies of mental health and illness focus on urban low-income
women. Areas addressed are depression, including the role of friendship
(Poslusny, 1990) and psychosocial factors associated with depression
(Tomes, Brown, Semenya, & Simpson, 1990), and relationships between
married partners (Vega, Kolody, & Valle, 1986). Two strategies aimed
at increasing one's sense of personal mastery were a prevention-oriented
stress management training program (Tableman, 1989) and a
counseling/vocational approach to improving one's self-concept (Texidor
del Portillo, 1987). The environmental and social conditions experienced
by low-income women in urban settings can be expected to increase their
risk for mental illness. The literature offers a limited and unclear
picture of these risks.
Studies of the economics, ethics, policy, and legislation of health
care, which are not specific to urban women, have addressed the economics
of women's health (unmet health needs in the areas of prenatal and
preventive care), insufficiency of women's retirement pensions, need for
essential mental health services, inclusion of women in clinical trials,
and use of community-based inventories of homeless and addicted women to
identify their health concerns (Golding, 1992; Hewitt, 1990; Hubbell,
Waitzkin, Mishra, & Dombrink, 1989; Krauss, 1993; Mastroianni, Faden,
& Federman, 1994; Nyamathi & Flaskerud, 1992; Thomas, 1990; Woods,
1988). These policy aspects are important to the health of low-income
women in both urban and rural settings.
Low-Income Children and Youth
Increasing attention is being given to the health care needs of
low-income children as the effects of poverty become clearer. Descriptive
data are being accumulated and society's concern is stimulating policy
discussions and action. Interventions, however, have been focused largely
on selected health problems, and only limited attention has been given to
determining the impact, efficacy, and cost effectiveness of these
interventions. Comprehensive, community-based health care strategies have
yet to be initiated or tested, and the combination of factors involved in
children's accessibility to, and use of, health care services has not been
fully explored.
As noted in the preceding section on low-income women, a clear
definition of "low income" also is lacking. Although not a major
impediment to the research needed, use of consistent definitions, and
explanation of inconsistent definitions, would advance understanding of
the relevance and impact of low income in community health care. A term
frequently used is "poverty rate," which is the percentage of people in
any group with incomes below the poverty line.
Defining the Population. The U.S. health care system is
among the best in the world for many groups of individuals living in the
United States. It is woefully inadequate, however, to meet the needs of
many citizens who are children and adolescents who are poor and living in
urban areas. The current health care delivery system functions best for
individuals who are in middle or higher socioeconomic classes, have access
to personal physicians and hospital clinics, have personal health
insurance, initiate visits to health care providers, live in stable home
environments with strong nurturing family support systems, and belong to
the white majority population (Gelberg, Linn, Usatine, & Smith, 1990;
Hu, Covell, Morgan, & Arcia, 1989). All or most of these factors do
not apply to America's large population of disadvantaged urban children
and adolescents.
Health Status. Low-income children, especially in urban
settings, are disproportionately represented among individuals with
less-than-optimum health status (National Center for Children in Poverty,
1990). Poor children are more likely than nonpoor children to die young
and to suffer from illnesses and handicapping conditions (Starfield,
1992). This excess morbidity and mortality among low-income urban children
also imposes significant economic and social costs for society.
America's disadvantaged urban youth are at greater risk than the rest
of the population for a range of health problems that include unintended
pregnancy, AIDS and HIV infection, tuberculosis, drug abuse, and injuries
associated with violence, as well as chronic illnesses, dental and
dermatological problems, mental illness, and speech difficulties (Aday,
1993; Institute of Medicine, 1993; Murata, Patrick, Strehlow, &
Shuler, 1992; Roth & Fox, 1990). Violence is a public health
problem.
Children living in poverty are at risk of illness and dying from a wide
range of causes. Infant mortality is high because of short gestation
periods, low birthweight, and sudden infant death syndrome (National
Center for Health Statistics, 1991). These problems are, in turn, related
to maternal factors such as low maternal weight gain, obstetrical
complications, infections, smoking, drugs, and lack of adequate prenatal
care (Institute of Medicine, 1985).
Children from low-income households have relatively high rates of
several health problems. First, infectious diseases such as influenza,
meningitis, gastroenteritis, and parasitic diseases are much more
prevalent among poor children than among nonpoor children (Egbuonu &
Starfield, 1982). The occurrence of measles and other childhood diseases
for which vaccines are available may also be high because of low levels of
immunization. Second, chronic conditions, including high blood levels of
lead (Agency for Toxic Substances and Disease Registry, 1988), also are
prevalent among poor urban children, as are intentional and unintentional
injuries.
All these health problems are related to the living conditions of
poverty, particularly persistent poverty. Poor persons lack money to buy
goods and services that would help them avoid infection, accidents, and
injury. They often feel a loss of control over their lives and low levels
of self-esteem. Many have unhealthy lifestyles that include smoking and
alcohol and drug abuse, and many lack safety precautions such as smoke
detectors and seat belts.
The health problems of poor children have long-range effects on their
cognitive, social, and emotional development (Starfield et al., 1991).
Low-birthweight children are at risk for developmental delays,
particularly if they live in stressful environments. Common and easily
treated problems of childhood can create important barriers to development
if untreated. Otitis media, for instance, can lead to temporary or
permanent hearing loss and delayed language development. Measles and other
childhood diseases, for which immunizations are available, can produce
permanent damage to sensory organs and neurological functioning.
Contemporary urban problems and poverty are potentially devastating for
children. For example, children are being recruited into drug trafficking
as early as 9 and 10 years of age (Whitehead et al., 1994). Inner-city
children are both involved in and the victims of violence at higher levels
than ever before in American history. In addition, more urban children are
coping with parents who are addicted to drugs or infected with HIV. These
problems also have far-reaching effects since they may not only
dramatically reduce life expectancy rates for children, but also have
long-term social effects that can affect every member of
society.
Use of Health Care Services. Poor persons sometimes
underuse formal health services primarily because of cost, barriers to
access, transportation difficulties, language problems, and inadequate
hours of operation (Institute of Medicine, 1985). For many disadvantaged
urban youth, the formal health care system and social support structures
are simply not able to meet their multiple health and social needs.
Comprehensive community-based interventions that involve community
residents may be the only realistic solution to the health care crisis in
the inner cities (Haas, 1992; Wright, 1993).
Community-Based Strategies. Policy makers and child
health researchers have argued strongly for designing effective
interventions to combat the health problems of low-income urban children
(Blendon, Aiken, Freeman, & Corey, 1989; Jones, 1992; Mistral, 1991).
Yet, disparate funding sources continue to yield community-based
interventions and programs initiated in response to selected problems or
the health needs of a particular group. These programs are both focused
and funded categorically through different agencies and
programs.
Most recent health care initiatives emphasize the need for
family-centered primary health care and an integrated approach to
community health education and disease prevention programs (Farquhar et
al., 1990; Graham, Johnson, Hansen, Flay, & Gee, 1990; Haas, 1992;
Hancock, 1993). By expanding community-based interventions to include not
only the participation of community members in the design and
implementation of interventions, but also the full spectrum of care from
primary prevention to secondary and tertiary prevention, strides can be
made in improving the health status of high-risk children in urban areas.
Given the limited resources available and the wide range of problems to be
addressed, interventions must produce the desired outcomes and be cost
effective (Becker et al., 1992).
One of the great advantages of community-based health care strategies
is that they enable researchers and practitioners to address the entire
context of health care problems. This context includes socioeconomic and
cultural factors that may contribute to, or protect against, illness and
disease, as well as the interplay among individuals, families,
communities, and health care providers. The ability to address this broad
context is especially important in treating the health care needs of
disadvantaged urban youth which are usually inextricably connected with a
host of other factors (Pivnick, Jacobson, Eric, Doll, & Drucker, 1994;
Schorr, 1988).
For example, recent studies show close associations between family
environments and health problems from violence and drug abuse and risk of
AIDS (Berkowitz, Halfon, & Klee, 1992; Engelke & Engelke, 1992;
Pivnick et al., 1994). Other studies related to contextual factors show
that community attitudes toward health care professionals and the larger
society play an important role in an individual's actions regarding health
care (Erkel, 1985a, 1985b; Rowley & Tosteson, 1993).
Studies of community-based health care strategies for low-income
children have focused on categorical programs (e.g., HIV, substance use,
Title V, Healthy Start), governmental funding, and the need for
restructuring health care delivery systems (Klerman, 1991; Koplin, 1993;
Shea, Basch, Lantigua, & Wechsler, 1992; Sundwall & Tavani, 1991).
Much of this literature has focused on health service needs, and only
limited attention has been given to determining the impact and efficacy of
programs (Engelke & Engelke, 1992; Marcenko & Smith,
1992).
Some of the most exciting recent work, which has applicability to
interventions targeted at low-income children as well as other groups, has
focused on defining a target community (Assaf, Banspach, Lasater,
McKinlay, & Carleton, 1987; Becker et al., 1989; Farquhar et al.,
1990; Fisher, Auslander, Sussman, Owens, & Jackson-Thompson, 1992).
For example, some studies suggest that the family-centered strategy needs
to be supplemented with a larger concept of community that includes
extended family and nonfamily groups (Dubowitz, 1994; Fisher et al.,
1992).
Other studies show that collaboration between health care providers and
church groups has great promise as a community-based nursing intervention
(Levine et al., 1992; McDermott & Burke, 1993; Stillman, Bone, Rand,
Levine, & Becker, 1993), as does involvement of a variety of peer
groups (Julnes, Konefal, Pindur, & Kim, 1994; Levine et al., 1992;
Meister et al., 1992; Quirk, Godkin, & Schwenzfgeier, 1993). In
several cases, use of nonprofessional community members has been shown to
be effective (Meister et al., 1992; Mittelmark et al., 1986; Quirk et al.,
1993; Stillman et al., 1993).
In addition, several culturally specific programs incorporating the
attitudes and practices of ethnic populations seem to show promise in not
only educating inner-city youth about health care problems, but also
involving them in the solutions to these problems (Campinha-Bacote, 1991;
Hong, Kappel, Whitlock, Parks-Thomas, & Freedman, 1994; Hu, Keller,
& Fleming, 1989; Julnes et al., 1994; Thomas & Quinn, 1993). The
culturally specific programs are addressing both specific health care
needs and the contextual and social problems encompassing them.
The NINR currently supports several promising community-based
interventions targeted to urban youth. Three studies are addressing health
promotion among adolescents and the influence of violence. Another study
is testing risk behavior interventions to prevent AIDS.
Ethnic and Racial Minorities
Ethnicity and race are additional risk factors that add complexity to
the profile of urban underserved and vulnerable populations, a profile
that includes low income, low education levels, and low economic
opportunity. For ethnic and racial minorities, this profile is complicated
by the strengths that these populations offer in their family, health, and
work values which may be important, positive factors in their health care
factors that, too often, are overlooked if one focuses only on
socioeconomic factors (Hayes-Bautista, 1992).
Addressed below is the state of the science of community-based health
care strategies for three vulnerable and underserved ethnic and racial
minority groups: African Americans, Asian and Pacific Islander Americans,
and Latinos. Within these broad population classifications are many
diverse, heterogeneous subpopulations that continue to enrich the American
landscape. As these minorities become an increasing part of the U.S.
population, their health care needs and contributions deserve closer
attention.
Minority groups in the United States experience many of the same
diseases affecting all Americans and may have special needs or conditions
related to particular sociocultural or environmental factors. Their risk
for certain diseases is often disproportionately higher than the white
population, reflecting socioeconomic and/or cultural factors that
influence their use of health care services. Accessibility to health care
services is a common problem, relating to geography and socio- economic
status, and affordability (i.e., availability of insurance) is a problem
for many.
Although culturally relevant health care seems imperative, few
investigators have examined the appropriateness, adequacy, or
acceptability of care among these populations. Similarly, the need for and
use of a continuum of services, from preventive to restorative care, have
received little attention.
In the sections below, the panel describes, for each of the three major
groups, population data, major health problems, use of health care
services, and community-based health care strategies. The information
presented is not intended to be exhaustive, but to characterize the state
of the science in each area.
African Americans
Defining the Population. Although African Americans are
often perceived as a homogeneous group, the population is very diverse.
Notable differences are based on country of origin, religion,
socioeconomic status (income and education levels and occupation), area of
residence, and regional origin.
Most African Americans are native-born Americans of African ancestry.
However, in recent years, there has been significant immigration from
several Caribbean and African countries to major U.S. metropolitan areas.
Some researchers suggest that, regardless of country of origin, both
native and foreign-born African Americans tend to share common beliefs,
attitudes, and values (Dixon, 1994; Randall-Davis, 1989; U.S. Department
of Health and Human Services, 1985) and that the experience of being black
in America has produced sentiments that have evolved into a sense of
"peoplehood" among most African Americans (Dixon, 1994; Hatch, Moss,
Saran, Presley-Cantrell, & Mallory, 1993; Randall-Davis, 1989; U.S.
Department of Health and Human Services, 1985).
African Americans reside in all regions of the United States, with a
majority living in the southernmost regions of the country (Dixon, 1994;
Randall-Davis, 1989; U.S. Department of Health and Human Services, 1985).
About 23 percent live within small metropolitan areas, 19 percent live in
rural settings, and nearly 59 percent live in central cities where they
are often challenged by significant environmental hazards, including
pollution, substandard and overcrowded housing, crime, violence, and
generally high levels of stress (Dixon, 1994; Randall-Davis, 1989; U.S.
Department of Health and Human Services, 1985).
African Americans are represented in every socioeconomic group;
however, they are more likely than the majority population to be
unemployed and unskilled and to live within a household with an earned
income below the Federal poverty line. National data show that one in
three African Americans lives in a family whose income falls below the
Federal poverty level, compared with one in every eight Americans overall
(Mosbacher, 1991; U.S. Public Health Service, 1990). African Americans in
the workforce are highly concentrated in blue collar and service-related
occupations and are consistently underrepresented in management and
professional occupations (U.S. Department of Health and Human Services,
1985).
Health Status. Despite the many strides made in the
capacity to diagnose, cure, and control disease, the health condition of
African Americans lags far behind that of the total population. African
Americans have a higher risk of disease and premature death than any other
group living in the United States (Abraham, 1993; Dixon, 1994; U.S.
Department of Health and Human Services, 1985; U.S. Public Health Service,
1990).
The disparities suffered by African Americans were described by the
Secretary's Task Force on Black and Minority Health in the mid-1980s as
persistent, distressing, and excessive (Bowles & Robinson, 1989; U.S.
Department of Health and Human Services, 1985). Data indicate that the
leading causes of death among African Americans are the same as for the
total population, but African Americans suffer disproportionately from
cancer, cardiovascular disease and stroke, chemical dependency, diabetes,
homicide and unintentional injuries, infant mortality and low birthweight,
and HIV infection (Dixon, 1994; Hildreth & Saunders, 1991; National
Center for Health Statistics, 1993; U.S. Department of Health and Human
Services, 1985; U.S. Public Health Service, 1990).
The life expectancy of African Americans also lags behind that of the
overall population. For African Americans, their life expectancy is
currently 69.4 years and falling, compared with 75 years for the overall
population (Abraham, 1993; Dixon, 1994; National Center for Health
Statistics, 1993; U.S. Department of Health and Human Services, 1985; U.S.
Public Health Service, 1990).
The disparities in health and longevity among African Americans are
said to result from a number of factors, including lifestyle preferences,
habits and behaviors, many social- and economically related risk factors,
diagnostic limitations, and treatment limitations (Abraham, 1993; Dixon,
1994; Snow, 1993; U.S. Department of Health and Human Services, 1985; U.S.
Public Health Service, 1990). The combined effect of economic
disadvantage, medical disadvantage, and indigenous cultural factors often
impedes access to many health care services and resources (Abraham, 1993;
Dixon, 1994; U.S. Department of Health and Human Services, 1985; U.S.
Public Health Service, 1990).
Use of Health Care Services. Statistics demonstrate with
sharp clarity that African Americans do not receive enough early, routine,
and preventive health care. They often reside in areas not near formal
medical services, are unable to pay for care in largely fee-for-service
medical systems, are frustrated by recurring incidents of discrimination
and abuse, and lack sufficient insurance to cover health care costs. In
relation to these factors, African Americans are often described, in
comparison with others, as having become more tolerant of illness and
disease; less reliant on Western medicine; and less likely to utilize
ambulatory, inpatient, and extended care facilities for emergent care or
other health-related conditions (Abraham, 1993; Bailey, 1989; Dixon, 1994;
Lewin-Epstein, 1991; Snow, 1993).
Health care services research data confirm that, compared with other
populations, African Americans often have no usual source of medical care
and reportedly make fewer annual visits to a physician. As a result,
hospital emergency rooms or hospital clinics tend to be their most common
source of medical care (Abraham, 1993; Bailey, 1989; Dixon, 1994; National
Center for Health Statistics, 1993; U.S. Public Health Service,
1990).
Given current knowledge of disease prevention, health promotion, risk
reduction, early detection, and treatment, the health status and longevity
of Africans Americans could be significantly enhanced in spite of these
disparities (U.S. Depart- ment of Health and Human Services, 1985; U.S.
Public Health Service, 1990). If health care were made more available,
affordable, acceptable, and accessible, many diseases could be prevented
and many deaths could be avoided (U.S. Department of Health and Human
Services, 1985; U.S Public Health Service, 1990).
Community-Based Strategies. National health care efforts
have failed to reduce the health care burden of African Americans.
However, an increasing body of research suggests that community-based
health care strategies can be effective in promoting health and wellness
among this population (National Center for Health Statistics, 1993; U.S.
Department of Health and Human Services, 1985; U.S Public Health Service,
1990).
Drawing on as many aspects of community life as possible,
community-based health care strategies have proven to be successful in
bridging gaps within the health care system. By carefully designing
culturally sensitive programs that emphasize health promotion, risk
reduction, early detection, and early treatment of disease primary,
secondary, and tertiary prevention in a supportive community environment,
the health, health behaviors, and health outcomes of African Americans can
be positively influenced (Braithwaite, Murphy, Lythcott, & Blumenthal,
1989; Brooks, Smith, & Anderson, 1991; Kipke, Montgomery, &
MacKenzie, 1993; Molbert, Boyer, & Shafer, 1993; U.S. Public Health
Service, 1990).
The challenge faced by health care professions has been to design
health care strategies that maximize effectively the potential for
community participation in health-related initiatives (Kipke, Montgomery,
et al., 1993; Schneider, Greenberg, & Choi, 1993; U.S. Public Health
Service, 1990). The literature contains numerous reports by nurses and
other professionals describing strategies of care developed to address
many of the health care needs of African Americans and other underserved
populations.
Most notable among these reports are strategies to reduce the health
disparities of African Americans by implementing interventions focused
specifically on reducing infant mortality and low birthweight; prevention
and early detection of cancer; promotion of physical activities; AIDS
education, prevention, and risk reduction; reducing substance abuse;
prevention of coronary heart disease; and, coordination of health care
services and resources (Baranowski et al., 1990; Eng, 1993; Holland,
Foster, & Louria, 1993; Holman, Jenkins, Gayle, Duncan, & Lindsey,
1991; Kipke, Boyer, & Hein, 1993; Kipke, Montgomery, et al., 1993;
Lacey, 1993; Lacey et al., 1989, 1993; Lacey, Tukes, Manfredi, &
Warnecke, 1991; Mitchell & Daniels, 1989; Molbert et al., 1993;
Nyamathi & Flaskerud, 1992; Pearson, Jenkins, & Thomas, 1991;
Rubin & Black, 1992; Smith, 1989; Suarez, Nichols, & Brady, 1993;
U.S. Public Health Service, 1990).
Many of these strategies targeted to the African American community
have attempted to engage health-oriented institutions peripheral to the
community in developing community-based health care systems (Bowles &
Robinson, 1989; Fletcher & Himburg, 1991; Kang & Bloom, 1993;
Mitchell & Daniels, 1989; Rudolph, Kahan, & Bordeu, 1993). Other
community-based health care strategies utilize community settings that are
more engaged in the community's social structure, such as religious
institutions, housing units, community centers, and civic centers, as
points of access to this population (Baranowski et al., 1990; Eng, 1993;
Holman et al., 1991; Kipke, Boyer, et al., 1993; Kipke, Montgomery, et
al., 1993; Lacey, 1993; Lacey et al., 1989, 1991, 1993; Mitchell &
Daniels, 1989; Molbert et al., 1993; Nyamathi & Flaskerud, 1992;
Pearson et al., 1991; Rubin & Black, 1992; Smith, 1989; Thomas, Quinn,
Billingsley, & Caldwell, 1994).
Reports highlighting the impact of these two types of strategies
demonstrate that involving institutions perceived as being outside the
community often fails to achieve optimal involvement and that far greater
participation is gained by involving settings that are frequented by large
numbers of persons in the community and that play a strong role in
community life (Bowles & Robinson, 1989; Fletcher & Himburg, 1991;
Kang & Bloom, 1993; Lacey, 1993; Lacey et al., 1991, 1993; Mitchell
& Daniels, 1989; Rudolph et al., 1993; Smith, 1989). However, little
comparative research has been reported on the impact of these strategies
across various points of access.
Also highlighted in the literature are community-based health care
strategies that have addressed the health needs of African American
communities through incorporation of natural helpers, peer role models,
lay health educators, informants, and other persons indigenous to the
community into the health care team (Dignan et al., 1990; Eng, 1993; Lacey
et al., 1991; Rubin & Black, 1992; Suarez et al., 1993). The increased
familiarity of these individuals with African American lifestyles, values,
and beliefs has been suggested as making them uniquely qualified to serve
in this capacity.
Research suggests that involvement of persons indigenous to the
community in community outreach, health promotion, and health education
facilitates the organization, motivation, and mobilization of clients
within the African American community (Bowles & Robinson, 1989;
Fletcher & Himburg, 1991; Kang & Bloom, 1993; Lacey, 1993; Lacey
et al., 1991, 1993; Mitchell & Daniels, 1989; Rudolph et al., 1993;
Smith, 1989). Their use of techniques and strategies that "model"
behaviors familiar to persons within the community has been shown to be
consoling for those struggling with serious life problems (Dignan et al.,
1990; Eng, 1993; Lacey et al., 1991; Rubin & Black, 1992; Suarez et
al., 1993).
However, the ability of these individuals to encourage sustained
participation and to improve health, health care, and health outcomes
substantially has yet to be demonstrated. Similarly, methods for measuring
the effectiveness of community-based interventions are inadequate, and
data on effectiveness, including cost effectiveness, are
lacking.
Asian and Pacific Islander Americans
Defining the Population. Asian and Pacific Islander
Americans (APIAs) are a diverse, heterogeneous group of individuals who
speak different languages and have different cultures. Residents of the
United States, they or their parents or grand- parents come from Asia and
the Pacific Islands, which include countries in the Indian subcontinent
(e.g., India, Pakistan, Bangladesh, Sri Lanka), Southeast Asia (e.g.,
Vietnam, Laos, Cambodia, Malaysia, Thailand, Singapore, Philippines,
Indone- sia), East Asia (e.g., Japan, China, Korea), and the Pacific
Islands (e.g., Fiji, Micronesia, Tonga, Samoa, Hawaii).
Although specific projections differ, APIAs are considered one of the
fastest growing minority groups in the United States. The APIA population
in the United States is projected to reach between 17.9 and 20.2 million
by 2020 (Ong & Hee, 1993). The Bureau of the Census (1992) expects
APIAs to reach 10.7 percent of the U.S. population by 2050.
Health Status. The health issues confronting APIAs have
not been defined adequately. Neither the Healthy People 2000 policy
guidelines (U.S. Public Health Service, 1990) nor the Federal report on
Health Status of Minorities and Low-Income Groups (U.S. Department of
Health and Human Services, 1991) provides satisfactory data on APIA health
issues, particularly if one views health as a multidimensional concept in
which physical, social, mental, environmental, and economic aspects are
important. Errors and inconsistencies in identifying APIAs add to the
problem (Yu & Liu, 1992). Despite the limited data available, some
important findings have emerged.
Lin-Fu (1993) summarizes existing literature on APIA health problems.
Two infectious diseases are of grave importance: hepatitis B and
tuberculosis. Hepatitis B is of particular concern in new immigrants from
Southeast Asia where the problem is widespread. Infants born to mothers
infected with the hepatitis B virus (HBV) are at high risk of acquiring
HBV infection and of remaining chronically infected (Arevalo &
Washington, 1988; Centers for Disease Control, 1988; both cited by Lin-Fu,
1993). As noted by Lin-Fu (1993), chronic infection with HBV contributes
to primary hepatoma and cirrhosis.
Tuberculosis also occurs with greater frequency among Southeast Asian
refugees (Centers for Disease Control, 1991; Powell, Brown, & Farer,
1983; both cited by Lin-Fu, 1993). Unfortunately, many APIAs are infected
with drug-resistant tuberculosis strains.
Important genetic problems are alpha- and beta-thalassemia and
hemoglobin E (an abnormal hemoglobin). According to Choi and Necheles
(1983, cited in Lin-Fu, 1993), about 5 percent of Chinese Americans in
Boston are carriers of alpha- and beta-thalassemia. Hemoglobin E is found
in 30 million people, mostly Southeast Asians, a large number of whom have
immigrated to the United States, greatly increasing U.S. incidence
(Ferguson & O'Reilly, 1985). Crocker (1985, cited in Lin-Fu, 1993)
states that 28 percent of Laotians and 26 percent of Cambodians are
carriers of hemoglobin E. Rowley, Loader, Sutera, and Walden (1987, cited
in Lin-Fu, 1993) report that 14 percent of Southeast Asians in Rochester,
New York, are carriers of hemoglobinopathy. Lactase deficiency also is
common among APIAs (Lin-Fu, 1993).
Cancer is a serious problem among native Hawaiians, who have the
highest incidence of cancer of the stomach, breast, corpus uteri, and
ovaries and the second highest incidence of lung cancer in the United
States. Stomach cancer also is high among Japanese Americans, whereas
liver cancer is high among Chinese Americans (U.S. Department of Health
and Human Services, 1986, as cited by Lin-Fu, 1993). Other notable health
problems include nocturnal death (sudden death) in seemingly healthy young
people, particularly Hmong and Laotians (Lin-Fu, 1987); cardiovascular
disease (Chen, 1993b); and smoking (Centers for Disease Control,
1992).
Use of Health Care Services. Data on APIA use of health
care services and the factors involved in their use of these services are
very limited. Affordability is a major problem. Since 1990, more than 60
percent of the APIA population in the United States comprises foreign-born
immigrants, many of whom are on welfare (Ong & Hee, 1993). More than
25 percent of APIAs have no health insurance (National Center for Health
Statistics, 1991). These conditions pose barriers to health care services
use. Information is lacking on the use of health care services by
uninsured APIAs.
Accessibility is another problem. Hafner-Eaton (1993) reports that
Asians have considerably less access to the American health care system
than other groups, even when controlling for insurance and health and
income status. In addition to lack of funds, other barriers to receiving
timely care are language problems, location of services, and psychological
barriers (True, 1985). Common psychological barriers among APIA groups are
fear of hospitalization, fear of intrusive procedures, and preference for
traditional medicine and healers (Lasky & Martz, 1993).
APIAs also commonly underutilize mental health services (Matsuoka,
1990), a finding that does not necessarily correlate with less severe
conditions. As with general health care, proper utilization of mental
health services is influenced by location, availability, and cultural and
linguistic appropriateness of services (Sue, 1993).
The diversity among APIA cultures makes it difficult to generalize
about primary, secondary, and tertiary prevention practices across APIA
groups. Lasky and Martz (1993) explain that although traditional APIAs
engage in health practices to prevent illness, they may do so in
non-Western ways. In the case of traditional Pilipinos, for example,
prevention practices may include maintaining a balance of spirit, morals,
body elements, and diet (Baysa, Cabrera, Camilon, & Torres, 1980).
That is, rapid shifts from hot to cold are avoided. Air imbalances, such
as allowing wind to blow on the body, are avoided to prevent illnesses
such as colds, fever, and pneumonia. Being a morally good person is
desirable so that one deserves to have good things happen. Emotional
stress can cause disequilibrium and, subsequently, greater susceptibility
to illness.
Pilipinos, following their traditional prevention practices, also
underutilize health care services (Baysa et al., 1980). They may suppress
signs of suffering in front of strangers, are more expressive within the
family, and may not seek treatment or accept hospitalization in a timely
manner (Lasky & Martz, 1993).
Community-Based Strategies. Not knowing the extent of the
potential or real health problems of APIAs makes it difficult to design
community-based health care strategies that address the physical and
mental health care needs of APIAs (Guillermo, 1993; Sue, 1993). Also, many
health care providers do not understand the important role of culture in
the lifestyles and health behaviors of these groups (Andrews, 1992;
Lin-Fu, 1993). In addition, health providers may not recognize disease or
illness conditions in this population. For example, Pilipinos with mental
illness may seek treatment for headaches, insomnia, dizziness, or fatigue
(Lasky & Martz, 1993).
Few studies have assessed or tested health-related intervention
programs for APIAs (Chen, 1993a) or community-based health care strategies
for APIAs. Chen (1993a) explains that current data are insufficient to
assess the extent to which objective 8.11 of the Healthy People 2000
document has been met for the APIA population (U.S. Public Health Service,
1990). This objective addresses the need for a 50 percent increase in the
proportion of counties with culturally and linguistically appropriate
health promotion programs for racial and ethnic minority populations
(e.g., APIAs).
Recent national health surveys shed some light on the availability of
community-based programs for APIAs. The Asian American Health Forum
conducted a national survey of health promotion and disease prevention
programs available through APIA community-based organizations or public
entities (Guillermo, 1993). The survey revealed that 62 percent of the
organizations had some health programs for APIAs. Most of these programs
targeted HIV/AIDS; other programs focused on infectious diseases, mental
health, nutrition, and substance abuse. Health education was the most
frequent type of service delivered, followed by screening, counseling,
research, and primary care (Guillermo, 1993).
A survey of the Association of State and Territorial Health Officials
(1992) in the United States revealed that only 26 percent of respondents
felt that linguistically appropriate service delivery is of high priority.
The respondents also reported that bilingual/bicultural services were not
offered uniformly across service programs. Those that were offered dealt
with sexually transmitted diseases, HIV/AIDS, immunization, tuberculosis,
and maternal and child health programs. In summary, national data indicate
that current community-based programs for APIAs are inadequate for the
health care needs of these groups (Guillermo, 1993).
The NINR is currently supporting several community-based interventions
aimed at controlling the reemergence of tuberculosis, preventing
transmission of the disease, and promoting adherence to treatment. These
studies include intervention strategies for ethnic and racial minorities
infected with tuberculosis.
Latinos
Defining the Population. The Latino population is the
fastest growing minority group in the United States. Between 1981 and
1991, the U.S. Latino population increased at a rate of 4.1 percent per
year, reaching 23,350,000 in 1991. As a percentage of the national
population, persons of Latino origin increased from 6.8 to 9.3 percent
during the decade (Bureau of the Census, 1993). It is projected that, by
2010, Latinos are expected to total 39 million or 12.9 percent of the U.S.
population (Exter, 1992) and will be one of the fastest growing minority
groups. In the next 20 years, the number of Latinos between the ages of 45
and 54 will more than double and the number of women older than 75 will
triple (Biafora & Longino, 1990; Exter, 1992).
The Latino population in the United States includes four main groups:
Mexicans (63 percent of the U.S. Latino population), Puerto Ricans (12
percent), Cubans (5 percent), South and Central Americans (10 percent),
and other Latinos (8 percent) (National Coalition of Hispanic Health and
Human Services Organizations, 1988). Participation in the U.S. health care
system differs among Latinos based on group of origin and/or
identification, duration of residency in the United States, and
income.
Health Status. The prevalence of certain diseases varies
among Latino groups (Mendoza et al., 1991). Compared with whites, Latinos
are more likely to have diabetes, hypertension, AIDS, alcoholism, specific
cancers, and violent deaths (Council on Scientific Affairs, 1991). In a
nationally representative sample of Mexican, Cuban, and Puerto Rican
Americans (National Center for Health Statistics, 1985), Latinos of
Mexican descent were at highest risk for hypertension and cardiovascular
disease (Pappas, Gergen, & Carroll, 1990).
Risk factors among Latinos include excessive alcohol intake, obesity,
use of processed food, and stress (Bray & Edwards, 1991). Yet, despite
the high incidence of cardiovascular disease, especially among Mexicans,
mortality from this condition is reported to be low. Culture may serve as
a buffer for individuals at risk for heart attacks (Chrisman &
Kleinman, 1983).
Still, mortality from heart attacks is expected to increase among
Latinos, especially for those with untreated hypertension. This expected
increase is mostly due to the lack of cultural value Latinos have for
Western preventive health care practices and certain treatment regimens
for diseases such as hypertension and obesity (Chrisman, 1984). The fact
is that clinical symptoms of hypertension can go undetected for a long
period of time, and adherence to treatment is an issue among all patient
populations.
For inner-city, underrepresented populations, these problems are
compounded by poverty, low education, inability to read or speak English
or functional illiteracy in English, inability to follow a prescribed
regimen, and, for economic or cultural reasons, inability to seek health
care (Francis, 1991). It also has been reported that Latinos are less
likely to be willing to be hospitalized for their illnesses (Welch, Comer,
& Steinman, 1973). If preventive health care behaviors and adherence
to hypertension treatment regimens are not valued by Latinos as they are
by the majority white population, the chances for severe cardiovascular
complications are more likely to increase.
Among Latinos, Puerto Ricans have the highest incidence of diabetes and
are twice as likely to have used cocaine (National Center for Health
Statistics, 1985). Puerto Rican women also are more likely to smoke
cigarettes, increasing their risk for pulmonary and other related diseases
(National Center for Health Statistics, 1985).
Use of Health Care Services. Latinos tend to delay
seeking medical care. Reasons include underinsurance or no insurance
(Lieu, Newacheck, & McManus, 1993) and social or cultural factors such
as language barriers, health beliefs and practices, perceived health care
needs, and use of home remedies and traditional healers (Andersen,
Giachello, & Aday, 1986; Lukomnik, 1993).
Analysis of a study conducted by the National Access Survey between
1982 and 1986 revealed that twice as many Latinos as whites have no
regular source of health care (Weisfeld, 1987). Of the three major Latino
groups in the United States, Mexicans are least likely to have routine
physical examinations or to see a physician regularly (Warner, 1991).
Elderly Latinos rely on extended family members for support and care
(Ailinger, Dear, & Holley-Wilcox, 1993).
Although lack of access to health care services is not a problem unique
to Latinos, they are less likely in comparison with other minority groups,
such as African Americans, to use these services (Trevi€o & Moss,
1984). Lack of access and inability to qualify for health services are
posing major problems for medical institutions, which are reporting
increased use of hospital emergency rooms by Latinos as a way of receiving
health care.
This phenomena can be attributed to several factors: (1) lack of
resources available in the community to assist Latinos in becoming
socialized with the culture of health and to assist providers in becoming
socialized to Latinos' culture of health; (2) lack of value for preventive
health care; (3) inability to pay for health services; and (4) lack of
homogeneous sociocultural knowledge about this group.
A mutual understanding of concepts relating to the health values,
beliefs, and culture of the majority and Latino populations is pivotal to
the success of health services. Examination and testing of the adequacy
and acceptability of health care practices delivered to Latinos also are
imperative. For example, a group of Puerto Rican parents who had children
with cancer reported feeling more comfortable talking to a nurse about
their concerns and fears about childhood cancer than to a psychologist.
Psychologists were believed to be necessary only when people were
"mentally ill" by this group of parents (Munet-Vilarą, 1984). Existing
scientific data about health values and the utilization of these data in
delivering services to Latinos are random, anecdotal, and
limited.
Community-Based Strategies. For Latinos, as for other
populations, social constructs and cultural beliefs influence their health
behaviors and health-seeking practices. These beliefs and practices, which
may protect or impede health, must be considered when devising
community-based health care strategies.
For example, differing from the majority white U.S. population, Latinos
place extreme importance on "la familia" (the family), highly value
"respeto" (respect) for authority figures, prefer to develop interpersonal
relationships based on trust and "personalismo" (personalism), and believe
that every individual has a life mission (fate) that cannot be altered
(Perez-Stable, 1987; Sabogal, Marin, Otero-Sabogal, Marin, &
Perez-Stable, 1987). Some of these characteristics may explain why Latinos
tend to delay seeking formal medical care when needed.
The authors of one study comparing the beliefs and attitudes of Anglos
and Latinos reported that Latinos believed that bruises from being hit,
sugar substitutes, microwave ovens, breastfeeding, spicy foods, and
antibiotics could cause cancer (Perez-Stable, Sabogal, Otero-Sabogal,
Hiatt, & McPhee, 1992). The Latinos in this study were also more
likely to believe that cancer is a death sentence and to prefer not to
know that they have it.
In addition, use of traditional healers for specific illnesses,
especially those caused by "bad spirits" are still part of the
care-seeking health behaviors of some Latinos. Some Mexicans use
"curanderos" and folk healers; some Puerto Ricans seek care from
"espiritistas" (Giachello, 1985). While these services are sought
primarily by new immigrants who believe that Western medicine is not
effective, many Latinos use home remedies such as herbal teas and baths
along with conventional Western medical treatment such as chemotherapy for
cancer (Munet-Vilarą, 1984). These practices may be conducted without the
knowledge of nurses and doctors because the persons fear being
ridiculed.
Data on the impact, efficacy, and cost effectiveness of established or
innovative health care services for Latinos are limited. Community-based
interventions have been shown to be successful among Latinos and may
eventually decrease the cost of care when a partnership with the community
to be served includes members of the community as well as culturally
sensitive health professionals (Mahon, McFarlane, & Golden, 1991;
Milburn, 1993).
For example, in an Arizona suburban community of Latino migrant
workers, lay health workers were trained and used in a community-based
prenatal intervention project (Meister et al., 1992). Incorporating
sociocultural factors, the program included use of Spanish, community lay
workers as "promotoras" (health promoters), the indigenous system for
delivering health education, and a support network of health care
professionals. The use of lay workers as a community resource proved to be
one of the most successful strategies in this cost-effective program.
Information from this study can be extrapolated to other Latino
communities.
Community-based health care for Latinos can work if culturally
appropriate strategies are used. A cancer detection and prevention program
designed to reach underserved and poor Latino and black communities in
Dade County, Florida, was successful due to the strategies used
(Zavertnik, 1993). For example, Spanish newspapers and Latino radio
stations were used to reach the public, informing them about cancer
prevention services such as mammograms. Listeners also were able to call
with questions during an interview program offered by the radio
stations.
Other successful strategies in this program included informal talks and
networking at elderly meal sites in senior citizen centers, presentations
to church groups and organizations, and puppet presentations at Head Start
Sites. A signifi- cant change in in situ and local stage of disease was
observed among the group that was screened, in comparison with the un-
screened group. Financial savings also were reported to be significant
when compared with the costs of cancer treatment.

Urban Elderly
Elderly persons offer a rich resource of experience and knowledge on
which society can draw. Many continue to live with vigor well into their
80s or beyond, yet others suffer illness and disability. Constituting a
growing segment of the American population, elders utilize a significant
percentage of the country's health care resources. Comprehensive,
community-based programs have much to offer elderly persons at risk,
especially low-income frail elderly. Creative solutions that capitalize on
existing resources in both rural and urban areas are sorely
needed.
Ensuring that health care is available, accessible, affordable,
appropriate, adequate, and acceptable to all elderly persons, including
the frail elderly, requires community-based health care strategies that
include codetermination of health care intervention strategies among
consumers, nurses, physicians, and other health care professionals.
Careful attention also must be given to including elders in decision
making about their health care to ensure that their concerns about their
quality of life are incorporated into the strategies adopted.
Defining the Population. Persons aged 65 and older
represent about 12 percent of the U.S. population (U.S. Senate Special
Committee on Aging, 1991). This proportion is expected to increase to
between 18 and 20 percent by 2030 (Board of Trustees, 1994).
Health Status. Aggregate data on the health status and
costs associated with health care for elderly Americans are startling.
Although elderly persons comprise about 12 percent of the U.S. population,
they account for 31 percent of all hospital discharges, 42 percent of all
short-stay hospital days, and more than 34 percent of the country's total
health care expenditures (U.S. Senate Special Committee on Aging, 1991).
The projected increase in the proportion of elders over the next 40 years
is likely to be accompanied by substantial increases in total health
spending.
The average annual number of days of restricted activities due to acute
and chronic conditions for persons aged 65 and older in 1990 was 31.4
(i.e., 1 month out of every year is lost to illness and frailty), of which
2 weeks, on average, are spent confined to bed (National Center for Health
Statistics, 1992). Further, nearly 32 percent of persons aged 75 years and
older report their health as "fair" or "poor" (National Center for Health
Statistics, 1992).
The health needs and costs for elderly persons are influenced by a
myriad of social issues, including housing, transportation, and fixed
incomes. Older persons have substantially less cash income than those
under 65, and the old-old (85 years of age and older) have significantly
lower money incomes than the young-old (65 to 74 years of age) (U.S.
Senate Special Committee on Aging, 1988). Further, the median income of
elderly women is slightly more than half (56 percent) the median income of
elderly men (U.S. Senate Special Committee on Aging, 1988).
Elderly persons living in urban areas face special challenges. Although
urban areas have greater numbers and types of health care services and
more rapid introduction of new technologies than rural areas, urban
elderly face different access problems, including those related to
transportation and sociodemographic factors (Prospective Payment
Assessment Commission, 1993, 1994).
Use of Health Care Services. Elderly Americans today
consume a disproportionate share of the nation's health care resources in
part due to the availability of Medicare and supplemental insurance and
the acute and highly technical services required to care for exacerbations
of multiple chronic conditions. Currently, 96 percent of adults 65 or
older are enrolled in Medicare (Prospective Payment Assessment Commission,
1994). Per capita health care expenditures for people in this age group
are almost double those for 45- to 64-year-olds and almost 4 times the
average for individuals aged 18 to 44 (Prospective Payment Assessment
Commission, 1994).
However, as a consequence of health insurance coverage lagging behind
use patterns and the inflation of medical care prices, out-of-pocket
health care expenses by elderly persons now comprise the same proportion
of their incomes as prior to the enactment of Medicare and Medicaid (U.S.
Senate Special Committee on Aging, 1988). More than 26 percent of persons
age 85 years and older have only Medicare for their health insurance
coverage (National Center for Health Statistics, 1992).
Many elderly persons have special needs for social support associated
with loss of spouse and friends, reduced physical capacity to engage in
usual social activities, lower cognitive function, and clinical depression
which is often a reaction to frailty, chronic disease, and other losses.
These social support needs cannot be overlooked: Only about 5 percent of
elderly persons live in nursing homes at any given time; relatives
represent 84 percent of all caregivers and provide 89 percent of all days
of care for disabled elderly men living in the community (U.S. Senate
Special Committee on Aging, 1988).
Community-Based Strategies. A variety of community-based
intervention strategies have been used to prevent disease, promote health,
and provide supportive and restorative health care among elderly persons
residing in urban settings. Examples of these interventions are given
below to highlight the state of the science and to point to research needs
and opportunities. Many of them may be applicable to rural areas and
diverse population groups.
Primary and Secondary Prevention
Many diseases of older adults cancer, cardiovascular disease, pulmonary
diseases, stroke/cerebrovascular disease, and unintentional injuries stem
from long-term habits that undermine health inactivity, alcohol abuse,
physical abuse, psychological abuse, high-fat/low-fiber diets, and poor
compliance with recommended prevention and disease-screening protocols
(Berg & Cassells, 1990; Sattin, 1992; Surgeon General, 1993; Tinetti,
Speechley, & Ginter, 1988). These diseases and habits are common to
both urban and rural older adults.
Primary and secondary prevention strategies, when placed within a
comprehensive health care outreach and service delivery system, offer ways
of reducing the risks and effects of these diseases through health
promotion, disease prevention and screening, and early diagnosis and
treatment. Through health promotion one aspect of primary prevention it is
possible to modify elderly persons' high-risk behaviors such as smoking,
excessive alcohol intake, and lack of physical activity. An increase in
"protective" activities, such as exercise and making environmental changes
for safety, is also possible. Immunizations another aspect of primary
prevention can reduce elderly persons' risk for upper respiratory
infections, such as influenza and pneumonia. Screening for cancer or other
serious diseases secondary prevention can identify early signs of diseases
that increase with age.
For these and other primary and secondary prevention services,
community-based strategies offer an appropriate public health context that
can have major benefit for elderly persons throughout the United States.
Such strategies include health fairs that offer a wide range of screening
programs; educational forums; public service announcements on television
and radio; dissemination of prevention tip sheets and workbooks;
"one-stop-shopping" centers for meals, health screening, and social
support; technical assistance to public agencies and private organizations
serving older persons; and neighborhood watch programs. Experience has
been gained in using these and other community-appropriate intervention
strategies to increase positive health outcomes for a growing segment of
American society.
Exercise and Functional Dependence. As an increasing
number of persons survive well into their 70s and 80s, greater societal,
public health, and clinical attention is being focused on the prevalence
and etiology of functional dependence and associated deterioration in
quality of life so that interventions can be developed to reverse or
prevent this dependence (Boult, Kane, Louis, Boult, & McCaffrey, 1994;
Kaplan, 1992; Kiel et al., 1989; Mor et al., 1989; Rowe & Kahn, 1987).
Most of the research in this area has been conducted among urban elderly,
largely because urban residents are more accessible to researchers. The
studies do not distinguish between urban and rural elderly or different
population groups.
In addition to demographic factors (age, gender, race, income, and
education) and behaviors (smoking and excessive alcohol consumption),
factors frequently identified as independent predictors of functional
decline include arthritis (Guralnik & Kaplan, 1989; Mor et al., 1989);
lack of regular exercise (Kiel et al., 1989; Mor et al., 1989; Wagner,
LaCroix, Buchner, & Larson, 1992); falls within the past year,
particularly injurious falls (Dunn, Rudberg, Furner, & Cassell, 1992;
Kiel, O'Sullivan, Teno, & Mor, 1991; Mor et al., 1989); and obesity
(Kiel et al., 1989). In a cognitively intact population, inactivity and
other high-risk behaviors are amenable to prevention efforts.
Recent epidemiological research continues to confirm the benefit of
physical activity for positive health outcomes in later life (Wagner et
al., 1992). Older persons who engage in leisure-time physical activity
have reduced risks of morbidity and mortality as well as improved
functioning (Wagner et al., 1992). Moreover, changes in physical activity
levels over time are associated with changes in health status even for
persons 75 and older, supporting the value of exercise-based interventions
(Kaplan, 1992).
Sustained, regular physical exercise has been hypothesized to improve
health and well-being through mechanisms such as improved self-efficacy,
expanded social networks, attention effects, and direct physiological
responses. Sorock et al. (1988) found in one investigation that walking
more than 1 mile at least 3 times per week was protective against
suffering a fall injury even after controlling for important
health-related confounders.
Until recently, however, prevention-oriented exercise interventions
were not conducted in older populations, which are assumed to be
uninterested in or unable to adopt new lifestyles (Gatz, Popkin, Pino,
& VandenBos, 1985). These myths are now being challenged by recent
studies showing that older persons can be successfully recruited and
retained in community-based exercise programs (Stevens, Hornbrook,
Wingfield, Hollis, & Greenlick, 1991).
A growing body of scientific evidence also indicates the feasibility of
obtaining high levels of physical activity adherence among older persons
(Blumenthal et al., 1989; Emery, Hauck, & Blumenthal, 1992) and of
methods for achieving adequate long-term adherence (Dishman, 1988; Sallis
& Hovell, 1990). Studies of physical activity in middle-aged and
older-aged adults show that adherence rates of 70 percent or higher are
feasible in group- or class-based programs (Wood et al., 1983, 1988) and
in properly supervised home-based programs (King & Fredericksen, 1984;
King, Haskell, Taylor, Kraemer, & DeBusk, 1991; King, Taylor, Haskell,
& DeBusk, 1988; King, Young, Oka, & Haskell, 1992) using
appropriate techniques such as regular telephone and mail contact
supplemented with periodic face-to-face encounters.
These studies underscore the utility of a regularly delivered package
of behavioral strategies for enhancing long-term adherence to exercise
regimens among older adults. The strategies include behavioral contracts,
ongoing monitoring, regular feedback, engaging of a person's support
networks, and consistent staff support. Such efforts and strategies are
natural components of a comprehensive community-based health promotion
program targeted to elderly persons.
Smoking Cessation. Smoking continues to be a major health
risk for most populations, including lower income and older persons.
Nearly 15 percent of males and 12 percent of females age 65 and older
smoked cigarettes in 1990 (National Center for Health Statistics, 1992).
Although this reflects a significant drop in smoking by elderly males,
from about 29 percent in 1965, older women still smoke at higher rates
than their 10 percent rate in 1965. These numbers do not reflect total
lifetime exposure to cigarette smoke. Currently, nearly 30 percent of
males age 45 to 64 years smoke (National Center for Health Statistics,
1992).
Smoking compounds other health risks among the elderly as well. Among
Americans aged 65 to 74, 70 percent have hypertension, 34 percent have
borderline high serum cholesterol, and 33 percent are overweight (National
Center for Health Statistics, 1992). The six leading causes of death in
the United States in 1989 were, in order: heart disease, malignant
neoplasms, cerebrovascular diseases, accidents and adverse effects,
chronic obstructive pulmonary disease, and pneumonia and influenza
(National Center for Health Statistics, 1992). All of these diseases and
injuries have some link to smoking.
Through research, increasingly sophisticated intervention techniques
have been developed to promote smoking cessation, including intensive
group behavioral programs, nicotine replacement therapy, brief cognitive
interventions, public media campaigns, workplace smoking cessation
policies, and restrictions on smoking in public facilities. Further,
health care professionals can have a powerful impact on patients' smoking
behaviors (Hollis et al., 1994; Hollis, Lichtenstein, Mount, Vogt, &
Stevens, 1991; Hollis, Lichtenstein, Vogt, Stevens, & Biglan, 1993).
These techniques and opportunities can be combined to effect positive
change in smoking habits among elderly persons.
Research shows that intensive group-intervention efforts, coupled with
medical and nursing support, can be highly effective in reducing high-risk
behaviors, such as smoking, among persons amenable to change (Hollis et
al., 1991, 1993, 1994). Low-intensity, brief, personalized interventions
for smoking cessation, although not nearly as effective as group
approaches, can also be highly cost effective (Hornbrook et al., 1995).
Interventions that combine physician advice with nurse counseling in
primary care settings, if widely disseminated, appear to offer substantial
promise for reducing national prevalence rates for smoking, including
prevalence rates among elderly persons.
Disease Prevention and Screening. Adherence to physician
recommendations and use of available preventive measures are two factors
that positively influence health status and yet are often overlooked by
elderly persons. The reasons for elderly persons' poor adherence to and
underutilization of preventive measures are not documented, and techniques
to improve adherence and utilization have not been rigorously
tested.
Hypothesized reasons relate, for example, to the lack of
transportation, poor health, reduced cognitive function, lack of education
about efficacy of prevention, and financial barriers to access (low income
and lack of Medicare coverage of preventive services). Older populations,
for example, often demonstrate poor adherence to immunizations recommended
by their physicians and health plans, even when insurance covers these
services (Mullooly et al., 1994). For individuals without health insurance
coverage for vaccinations, the cost (affordability) of this important
prevention measure may be a barrier to its use.
However, even among persons with coverage (e.g., individuals
subscribing to health maintenance organizations offering these services),
adherence in terms of the recommendations of the U.S. Preventive Services
Task Force is low (Mullooly et al., 1993; U.S. Preventive Services Task
Force, 1989). Techniques to influence elderly persons' approach to
immunizations (e.g., ignorance of, resistance to, lack of belief in
efficacy of) have not been thoroughly tested, although research has shown
that influenza immunizations can be a cost-saving measure for
community-based health care systems (Mullooly et al., 1994).
Underutilization is demonstrated by elderly persons' use of
mammography. This procedure has been shown to be an effective, including
cost-effective, screening service for elderly women (Shapiro, Venet,
Strax, & Venet, 1988; Tab r, Faberberg, Day, & Holmberg,
1987) and, as a result, is now covered by Medicare. However, removal of
financial barriers to this service has not produced desired screening
levels among older women (Zapka, Stoddard, Costanza, & Greene, 1989).
Other factors that may be involved have not been delineated.
Breast cancer rates continue to be highest among unscreened women of
all ages, indicating that high priority should be placed on the screening
of populations that lack access to screening services, particularly
low-income, nonwhite, elderly women living alone (Sobel et al., 1989).
That is, the risk factors for underservice in urban areas correlate
strongly with underuse of cancer screening services.
Tertiary Prevention
Supportive and restorative services for older adults have been offered
as part of comprehensive integrated health care programs or as separate
and distinct intervention activities. Most commonly, these services (such
as home health, case management, homemaker services, personal care,
companion services, adult day care, transportation, home and centralized
meal programs, and respite for caregivers) have been viewed as lower-cost
alternatives to expensive hospital and nursing home stays.
Comprehensive, Integrated Strategies. Over the past two
decades, several comprehensive strategies of supportive and restorative
services for older adults have been implemented and evaluated in projects
funded under Medicare and Medicaid waivers and by private foundations.
Many of these strategies have been implemented in urban settings and have
targeted specific aspects of community-based care, most commonly,
accessibility, appropriateness, and adequacy of services. There has been
limited examination of differences in implementation and outcomes of these
comprehensive strategies between urban and rural settings and limited
attention given to the acceptability of comprehensive community services
to urban elderly.
Community care demonstrations funded through Medicare and Medicaid
waivers in the 1970s and 1980s offered case management and an expanded
package of community services to reduce nursing home placement of
community dwelling older adults (Kemper, 1988; Weissert, 1985). These
demonstrations, in aggregate, showed that although caregiver satisfaction
improved, the small savings gained in reduced nursing home days did not
offset the increased cost of providing expanded community
packages.
Analyses also indicated that, in several programs, participants were
not screened adequately to identify those at highest risk of nursing home
placement and, thus, the programs had expanded services to many
individuals less likely to use expensive nursing home days (Kemper, 1988;
Kemper, Applebaum, & Harrigan, 1987; Weissert, 1985). Programs that
used specific nursing home screens as sampling criteria, such as the South
Carolina Community Long-Term Care Program, were more likely to show a
savings in cost (Kemper et al., 1987).
In 1985, the Social Health Maintenance Organizations (Social/HMO)
demonstration, funded by the Health Care Financing Administration, was
implemented to examine the impact of an integrated acute and chronic
health care continuum on the quality and costs of care for Medicare
beneficiaries (Greenlick, Nonnenkamp, Gruenberg, Leutz, & Lamb, 1988;
Leutz, Greenlick, Ervin, Feldman, & Malone, 1991). Each of the four
Social/HMO sites is located in an urban setting. In addition to
traditional Medicare-covered services, the Social/HMO demonstration sites
offer expanded community care and nursing home services (Leutz, Abrahams,
& Capitman, 1993; Leutz, Abrahams, Greenlick, Kane, & Prottas,
1988).
As in the previously cited demonstrations, the Social/HMO
demonstrations rely on case management to monitor and coordinate services
for high-risk individuals and to address issues of appropriateness and
adequacy of care (Abrahams, Macko, & Grais, 1992). However, the
results of recent studies of decision making among case managers suggest
that there may be considerable variation between case managers in
decisions related to allocation of services, thus affecting older adults'
access to adequate and appropriate services (Abrahams, Capitman, Leutz,
& Macko, 1989). In addition, initial enrollment in the Social/HMO
demonstrations was very slow, suggesting that clients had concerns
relating to the acceptability and perceived affordability of the more
comprehensive package of community services (Greenlick et al.,
1988).
The Supportive Services Program for Older Persons, funded by the Robert
Wood Johnson Foundation, more directly addressed the acceptability of a
variety of community services to older adults. Eleven participating home
health agencies used consumer-driven marketing research approaches to
determine which community services would be acceptable and affordable for
older adults and their caregivers (Hereford, 1989). The intent of this
study was to build home health agencies' capacity to offer new services
that would become self-supporting. Services in greatest demand by older
adults and their caregivers were home maintenance, housekeeping, and yard
and chore support. Case management was not in as high demand as
anticipated. The results indicate a need for nontraditional community
services and a willingness of older adults to pay for selected services
even when their incomes are limited (Hereford, 1989).
These and other studies of comprehensive strategies for supportive and
restorative community services demonstrate both a demand and unmet need
for these community services. To date, federally subsidized strategies
have not shown consistent quality or cost outcomes in either urban or
rural settings. Most of the studies have emphasized issues and outcomes
related to the potential cost savings of home-based and community care in
comparison with institutional care. However, it is important to note that
the interventions tested in these studies may have influenced directly
and/or indirectly some or all of the components of community-based care,
including the availability, accessibility, affordability, appropriateness,
adequacy, and acceptability of services. The results of these studies
should be examined for information about strategies that enhance or
diminish the effectiveness of community-based care for older
adults.
Nursing-Centered, Focused Interventions. In contrast to
comprehensive, integrated strategies of supportive and restorative
services, some community programs have focused on specific needs or sets
of needs of vulnerable older adults. These needs include transitional care
between health care settings (Naylor, 1990), long-term monitoring of
chronic illness (Lamb, 1992; Lundeen, 1993), assistance with personal care
and activities of daily living (Jamieson, 1990), respite care (Jamieson,
1990), and support for caregivers (Archbold, Stewart, Greenlick, &
Valanis, 1993).
An example of work currently supported by the NINR is a study to
examine the effects of a short-term, standardized nursing intervention. In
this study, the investigators are examining the quality of life and
outcomes for postsurgery cancer patients 60 years and older and family
caregivers' perceived burden.
In these strategies of care, nurses increasingly play pivotal roles as
administrators, decision makers on resource use, and evaluators of the
quality and cost effectiveness of care. These strategies typically also
are based on comprehensive community assessments and active consumer
participation (Jamieson, 1990; Lundeen, 1993).
Riesch (1992a) identifies three categories of nursing-centered models:
(1) community health or outreach models, which may include hospital and
university-affiliated clinics (Culbert-Hinthorn, Fiscella, &
Shortridge, 1985; Lundeen, 1993), parish nurse programs (McDermott &
Burke, 1993), or block nursing programs (Jamieson, Campbell, & Clarke,
1989); (2) wellness and health promotion models; and (3) independent
practice models. Each of these nursing models contains numerous examples
of supportive and restorative programs for elderly persons. Most have been
implemented in urban settings.
Research examining these models is extremely limited. As noted by
Riesch (1992a, p. 22):
We know the clients and patients are satisfied with the care. We know
how many and [what] types of persons avail themselves of the services.
However, we know very little about the scientific adequacy of practice in
these centers, the cost of care, and the outcomes.
Available studies provide helpful information about the use and
acceptability of services in nurse-centered community strategies. However,
there is little information on: (1) the nonmedical factors that place
elders at risk of departing from the community, (2) predictors of the type
and amount of supportive and restorative services needed by frail urban
elderly and their caregivers, or even (3) descriptors of skilled community
nursing care (Lang, Kraegel, Rantz, & Krejci, 1990; Lundeen, 1993).
Little is known about how nurse-centered community strategies influence
access, adequacy, or appropriateness of services for older adults in urban
areas.
Urban Workers
Workplaces can be viewed as communities of workers having a variety of
health care needs. Occupational health services have been developed in
response to these needs, meeting the demand for health promotion, disease
and injury prevention, as well as case management to minimize the effects
of disease and disability associated with occupational health problems. As
the American workplace changes, so will these services.
Comprehensive, community-based approaches are as valid for workers as
for other communities. Faced with a myriad of different and changing job
hazards, workers can benefit greatly from integrated primary, secondary,
and tertiary prevention services. In addition, the workplace offers an
important arena for health promotion activities directed at modifying
behaviors or risk factors associated with diseases and conditions common
among the U.S. population and for addressing the health care needs of
vulnerable and otherwise underserved populations.
Defining the Population. Today's occupational health care
is frequently characterized as uncoordinated, fragmented, and inadequate
to meet the health needs of employees. The workplace has recently been
described as "America's forgotten environment" (Department of Occupational
Safety and Health, AFL-CIO, 1993). Workplace injuries, illnesses, and
fatalities impose tremendous costs on workers, employers, and
society.
Employers are placing greater concern on the health needs of elderly
persons, ethnic minorities, women, adolescents, and the physically
challenged. Ethnic minorities, particularly African Americans, Asians, and
Latinos, will influence the composition of the workforce in coming
decades. Between 1980 and 1987, the number of African Americans in the
U.S. workforce increased by 13 percent and the number of Latinos by 34
percent, soaring above the 7 percent increase for whites (Aguirre-Molina
& Molina, 1990). Substantial increases in the number of Asian
Americans in the U.S. workforce also are projected. Johnson and Packer
(1987) note, "Only 15 percent of the new entrants to the labor force over
the next 13 years will be native white males, compared to 47 percent
entrants in that category today."
These changes will influence the types of health services needed and
the types of worksites in which they will be offered. For example, given
current patterns, ethnic minorities are more likely to be employed in
semiskilled or nonprofessional occupations, will more often hold jobs that
do not offer access to health care programs, and will have larger families
with a high rate of households headed by single females (Aguirre-Molina
& Molina, 1990). Physically challenged workers also will require a
different array and form of health services.
Health Status. Changes in the workplace have increased
the need for occupational health and safety services. Premature death,
diseases, injuries, and other unhealthful conditions resulting from
occupational exposures pose important national health problems (U.S.
Public Health Service, 1990). During 1987, permanent impairments on the
job increased from 60,000 to 70,000, and totally disabling injuries
numbered 1.8 million (U.S. Public Health Service, 1990).
Nearly 10,000 workers are killed on the job each year by traumatic
injuries, and almost two-thirds of these (6,900) are workers in urban
settings such as construction, manufacturing, transportation, public
utilities, service industries, and government (National Safety Council,
1992, p. 38). Six million individuals are injured, and more than 300,000
are made ill each year by workplace hazards (Bureau of Labor Statistics,
1992). As many as 100,000 workers die each year from the long-term effects
of occupational diseases (Department of Occupational Safety and Health,
AFL-CIO, 1993).
As noted by Peck, Goldbeck, and Myers (1987), (a) new technologies,
including computers, robotics, lasers, etc., that have the potential to
displace workers can pose new health threats in the workplace, including
stress from forced unemploy- ment or the fear of unemployment, which can
be linked to health problems; (b) hazardous substances have potential for
negative effects on both workers and communities; (c) certain types of
worksettings (e.g., hospitals, construction sites) are more hazardous than
others; (d) growth in small businesses and service industries has
increased the number of employees without health benefits; (e) violence
has increased in the workplace; and (f) worker demographics are changing,
with more minorities, women, adolescents, and elderly in the workforce.
Among low-income individuals working, for example, in construction and
service jobs, injuries and illness may be associated with, or aggravated
by, low literacy and/or poor English-communication skills.
Use of Health Care Services. Corporations have limited
control over the quality and increasing costs of health care. Yet they pay
for this care for 150 million Americans; in 1990, companies spent more
than $3,000 per employee for health care benefits (Health Insurance
Association of America, 1990). Corporations will have increasing
difficulty absorbing annual increases in health care costs of 20 to 30
percent, an amount representing more than one-half of American companies'
pre-tax profits (Herzlinger & Schwartz, 1985).
The current debate over different strategies for health care reform
leaves the future scope of occupational health services unclear. Some
believe there will be an expansion of better coordinated primary health
care services provided at or near worksites (Bryant, 1991; Burgel, 1992);
others believe the future lies in health promotion services and reduced
primary care services at worksites (Scofield, 1990). In the 1960s and
1970s, interest in occupational safety and health focused on work-related
injury and illness and employers' responsibility for identifying and
controlling workplace hazards. In contrast, the 1980s were characterized
by a focus on work-related health problems for which primary
responsibility was placed on individual workers with emphasis on
behavioral change and self-management techniques. These two approaches
coexist in most workplaces today independent of each other, resulting in a
piecemeal, uncoordinated approach to managing workplace health issues
(DeJoy & Southern, 1993).
Community-Based Strategies. The literature indicates that
the companies providing most of the health services at worksites have 50
or more employees and that the larger the company, the greater amount of
services offered (U.S. Department of Health and Human Services, 1993). To
control direct and indirect health care costs, larger companies are
providing onsite primary care for employees and their dependents. The
workplace not only offers convenience and accessibility for primary health
care delivery, but also provides an opportunity for monitoring outcomes of
care (Burgel, 1992). Within these settings, occupational health nurses
provide a wide array of comprehensive health and safety services for
workers and their families (American Association of Occupational Health
Nurses, 1993).
Current Worksite Strategies
In a study to document the current complex role of occupational health
nurses, Lusk, Disch, and Barkauskas (1988) surveyed 173 Fortune 500
companies and found that most of them employed nurses 90 percent employed
registered nurses, 61 percent employed safety engineers, 61 percent
employed physicians, and 45 percent employed industrial hygienists. The
survey described the four most commo |